Being In school with Cystic Fibrosis-School Stories

My journey with school is not over yet, as sad as that is. I’m only just moving onto high school, but I’ve had my fair share of school experiences. Especially when you have cf, it gets a little more interesting.

When my sister and I were in elementary school, we wold walk down to the office and they would give us our enzymes before we went down for lunch. Since we didn’t have problems til middle school, we didn’t need to worry about carrying around our inhalers on us. So, each day we would leave 5 minutes early before we went to lunch to go down to the office. It would be annoying because people would ask  why and we didn’t really know what to tell them.

It wasn’t until middle school when it changed. Since we had bells we didn’t need to leave early and we would go to the office and didn’t need to ask them for our medicine. We would have our enzymes in our lunch boxes. We had the option of taking them in the lunchroom, but we decided against it since people would ask questions. We would have our inhalers in our backpacks.

When I started getting sick, I was on home bound for half the year. Even when I got back I left my books and binders for each class in the rooms, so I didn’t have to go back to my locker in between classes since my classes were all over the school and my locker was on the opposite side of the school of those classes. It would cause me to have breathing issues and be out of breathe, so i liked that to not be an issue.

I am going to be home schooled next year, probably all throughout high school due to frequent sick days and getting hospitalized every few months.


  1. Wow having to go get the enzymes sounds so annoying. I’ve always had them with me and I’ve always taken them in front of people lol. Does your sister have CF too? That sounds amazing and annoying at the same time!

    Liked by 1 person

    1. Ya we both have cf. It can be good to have someone else who understands and at the same time can be frustrating.


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