Hospital Diaries Day #1-2

Previously on yesterday..

So while my mom was at work she got a call saying that a bed was ready. So I got to the hospital around 4. My room is big! Its one of the two big rooms so i’m happy that I didn’t get one of the crappy rooms I’ve had the last 3 times.

I got all of my meds sorted and got and x-ray taken of my lungs. When I got back to my room I had to get blood taken. They took 6 vials so I was a bit shaky afterward.

My vest treatments are at 8, 12, 4, and 8. I have percussion therapy twice a day also.


I’ve done so much today. I was npo from midnight to 11 in the morning. I was already in a bad mood because I thought i was going to be getting a picc line today. When I finally got caffeine in me, my mom ordered us food for brunch.

After my first two therapies, I had percussion already done for today. I have pfts. My FVC is 71 and FEV1 was 80. There down from a week ago, but it makes sense.

Im getting a picc and a scope tomorrow early morning. So far I’ve talked to psychology, gi, child life, respiratory therapists, and transport. I’m not in the best mood today, but its better than earlier.

Thats all for now,



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