Just a quick post, updating you. I did get discharged last night and am home with my dog. Luckily I was able to go home on IV antibiotics for two weeks along with having to do vest treatments 4 times daily.
Hopefully Ill start posting more soon!
I’m just chilling in bed, not my bed, but the common hospital mattress i’ve grown to loathe. Admitted friday, three days in, and I am already bored. My sister and I are, like usual, watching netflix, recently starting Criminal Minds on Netflix.
Since Friday, I started cefepime and tobramycin, unable to get a picc until tomorrow because they don’t do procedures over the weekend. The IV hasnt blown yet, cross my fingers it lasts.
With whats been going on with the pandemic, the whole floor had been closed but thankfully its opened now. Visitors are limited to one per patient and even then it has to be a primary guardian.
Anyways, thanks for reading and I hope you all have a good day!
Its been a bit.
Since I switched over to the cefepime and toby, i’ve felt a little better. The past couple days the doctors were thinking I would be able to go home but my antibiotic levels for tobramycin were high so it was delayed a couple of days.
The normal levels are around 5-10, but mine were around 20. It took a little adjusting of the medication, but now i’m on the right dose and my levels are normal.
Anyways, I’m hoping to get back into blogging and art once my course of antibiotics is over. I’m doing one more week at home so I get two weeks in total of the new medication, but at least I can finish at home.
Thats all for now,
Lots been going on. So i’m not feeling better and my pfts went down. They decided to change my antibiotics after talking to my main pulmonologist so now i’m on toby and cefepime.
My sister was able to get discharged today which is good since her pfts were up and she was feeling better.
Lately ive been playing a lot if sims and watching the office.
Thats all for now,
If you can’t tell, i’m not planning on uploading these posts daily. It can get repetitive very quickly so as not to bore you, I won’t be doing that.
It’s my fourth day in the hospital(I think). My picc procedure went well and it’s nice not having an iv in my arm anymore. I am worried because they had a lot of difficulty finding a vein.
I got poked twice before the nurse decided to get an ultrasound and find a vein that way. Even with it though, it almost didn’t work. She had to move it in and out a lot.
Anyways I’ve just been getting into the habit of things. I have therapy(vest) every four hours at eight, twelve, and four. my antibiotic is every eight so I roughly have something every two hours.
I got pfts today and they went down significantly. Considering when I got admitted they were around average, it makes sense. I did not close off the back of my throat so the numbers are reliable which I’m happy about.
Beside listening to Pan!c at the disco(house of memories)I’m not doing much but I’m hoping to know soon whether or not I’m staying for two weeks. I have drivers ed coming up in the beginning of March so I doubt things will fit in well but 🤞.
That’s all for now,
I went to my hospital around two today, just to get pfts. My doctor wasn’t on call so my mom spoke to the attending instead and made the decision to do the pulmonary test. Just in preparation, I packed a small bag and essentials just in case I was admitted.
My pfts were around the same. My FEV1 was around 80s and FVC the same. The respiratory therapist that did our PFTS called our main pulmonologist and we decided that after two antibiotics and steroids it was time to get admitted.
My sister, Mom, and I went to Michales and Cold-stone until we got a call that our rooms were ready.
We’re on a different wing so it’s much more quiet. Compared to our normal spot, there aren’t any crying babies and it’s more secluded so that’s a plus.
I’m hoping to get a picc line tommrow, NPO at midnight and I just got back fro X-rays.
I got here at around 9:30ish. I was going to have an equipment check, which happens once a year. It’s exactly what it sounds like. I bring my vest and such, make sure the settings are good and I’m using it right.
My mom is sick so she canceled it since the appointment was set for 8:30 in the morning.
Once I reached the floor for clinic we checked in and waited. After taking weight, height, and vitals, I went into pfts. Like the equipment check, with cf you do what is called a full once a year.
My FVC was 80, and FEV1 was 85. I’ve been having breathing problems and currently have a lung infection so it’s kind of a baseline for those standards.
I checked medication, treatments and symptoms, saw my dietitian, the nurses, pulmonary therapist, and also got a throat culture done. With my dietitian I did a grip strength test, which was under the 50th percentile so I had to talk to a physical therapist.
My doctor came in and all is well. Even though I don’t feel well, I might have gotten a cold from my parents but I think I have a lung infection. Afterward I went to applebee’s for lunch and went to michaels and got a new kneaded eraser.
Thats all for now,
Woo, here we go again.
Back at the hospital, but luckily I’m not inpatient this time. Right now it’s 10:50 and I just got pfts done. They didn’t have a room ready just yet so they decided to just get the test done.
My numbers are down even with glottic closure. My FVC is 65 and FEV1 is 71. Previously my numbers were 82 and the latter being 90, so I’m a bit surprised. With the closure it makes your numbers higher as well so 🤷♀️.
My weight hasn’t changed which is good. I started the whole 30 diet almost a week ago so that’s good, though I think I lost just a smidge.
It is now 1 and I’m almost done with clinic. I’m lowering my therapy from 30 to 20 minutes and taking an inhaler less. My doctor mentioned fibromyalgia with my joint pain, fatigue, and nausea so she referred me to a romatologist. I won’t be able to get in until next year though.
That’s all for now,