If you can’t tell, i’m not planning on uploading these posts daily. It can get repetitive very quickly so as not to bore you, I won’t be doing that.
It’s my fourth day in the hospital(I think). My picc procedure went well and it’s nice not having an iv in my arm anymore. I am worried because they had a lot of difficulty finding a vein.
I got poked twice before the nurse decided to get an ultrasound and find a vein that way. Even with it though, it almost didn’t work. She had to move it in and out a lot.
Anyways I’ve just been getting into the habit of things. I have therapy(vest) every four hours at eight, twelve, and four. my antibiotic is every eight so I roughly have something every two hours.
I got pfts today and they went down significantly. Considering when I got admitted they were around average, it makes sense. I did not close off the back of my throat so the numbers are reliable which I’m happy about.
Beside listening to Pan!c at the disco(house of memories)I’m not doing much but I’m hoping to know soon whether or not I’m staying for two weeks. I have drivers ed coming up in the beginning of March so I doubt things will fit in well but 🤞.
That’s all for now,
I went to my hospital around two today, just to get pfts. My doctor wasn’t on call so my mom spoke to the attending instead and made the decision to do the pulmonary test. Just in preparation, I packed a small bag and essentials just in case I was admitted.
My pfts were around the same. My FEV1 was around 80s and FVC the same. The respiratory therapist that did our PFTS called our main pulmonologist and we decided that after two antibiotics and steroids it was time to get admitted.
My sister, Mom, and I went to Michales and Cold-stone until we got a call that our rooms were ready.
We’re on a different wing so it’s much more quiet. Compared to our normal spot, there aren’t any crying babies and it’s more secluded so that’s a plus.
I’m hoping to get a picc line tommrow, NPO at midnight and I just got back fro X-rays.
When your eraser gets so dirty that it draws instead of erasing.
Today I’m getting discharged. I had my last antibiotic at 10 and now I’m waiting to get my picc put. I got my flu vaccine earlier and I’m almost done packing.
I started The Blood of Olympus, the last book of the Hero’s of Olympus. I’m already halfway through it and it’s amazing! Hoping to leave here soon and see my dog and sleep in my own bed.
Thats all for now,
I woke up nervously. I had a bronchoscopy today. I ended up being put on call, which meant that I would go down earlier than scheduled. Heading down around 11 instead of 12, I got vitals and answered all the questions.
Luckily I didn’t have to change into a gown down in the Pre-op room, having already changed in my room. I needed to do a treatment since I have therapy at 12, so they had me do albuterol through a nebulizers, which is always fun since it makes me extremely shaky.
The anesthesiologists came in, gave me some relaxing medicine through my picc and rolled me down to the operating room.
Waking up was difficult since they gave me more anesthesia than they do when I get a picc. The procedure went fine, nothing but inflammation. They took biopsy’s and are testing it.
Yesterday I had my dressing changed on my picc. It had bled more on top of the already dried blood. I have skin breakage underneath so they put medapore dressing on it, which is like gauze.
The downside is that I have to get it changed every other day, but that’s not really a problem for me. I like when I get it changed because then it exposes the skin to air.
From the skin breakage there is redness and basically skin breakage. It can get infected and such easier.
I’m working on another mandala and I’m hoping I can see my dog this weekend if my dad or mom can bring her up.
That’s all for now,
Tried to do school today. Worked a little but eventually I gave up as people kept coming in and out of my room and I was getting super anxious and stressed.
Child life left this on my door:
Which is truly amazing.
Tomorrow I have a CT scan at 1, and Thursday I have my bronc. There’s not a time yet though. I had pfts today, they were the same as last time. My numbers are actually really good, I think my FEV1 was at 90, but despite that I’m still having issues breathing.
I keep getting crappy sleep. Having vitals every six hours makes my night look like this:
5:30-6am- t-com check and another set of vitals
8- Therapy #1
So overall, not good. The t-com is checking my carbon dioxide levels. I have hyperventilation when I sleep and I’m supposed to wear a bipap but I can’t sleep with it on. I’ve tried several masks, had two sleep studies, attempted actually sleeping with it on, but no luck.
The normal level for it is low 40s. The past few days mine have been generally around 45-48 but today it was 50.
My morning afternoon schedule is like this, generally:
Physical therapy(sometimes morning, sometimes early afternoon)
4pm- therapy #3
8pm- therapy #4
Anyways that’s all for now,
In technicality it is day 4 of antibiotics but I’ve been here for 5 days.
To be honest, today was relaxing. As always sleep is a struggle but that’s besides the point. After my first treatment at 8, I watched a couple movies with my mom while reading.
I ended up finishing The Mark of Athena, the third book in The Heros of Olympus series. Read almost 200 pages and it was awesome. Now I’m on page 40 of House of Hades.
Yesterday I got $30 from doing a Picc study. I got Sims 4 Realm of Magic game pack and have been obsessing over it for the past day or so. Switching back and fourth between that and Minecraft, which made my game crash.
Now on my survival world there are random chunks of mountains near the spawn point. TNT is my friend for this occasion. It might sound cool, you know mountains and such, but it’s more like large 15×15 square chunks of land.
I tried working on school later in the day, Chemistry specifically. For my online school I can get ahead of pace, so from preparing for admission I am still ahead of pace in 4 of my 7 classes, being on pace in 3.
So in the grand scheme of things, not bad but I’d rather be ahead of pace escpecially so I can take a day off for my bronchoscopy.
That’s all for now,
I got my picc! It was around 11:30 when I went back and it went well.
In the morning I entered a study which the hospital is doing to see if there’s certain antibiotics that make pics go bad in the cf community. I get 60 bucks overall which is a nice addition. They just had to take blood from the site when I first got it and then right before I get it out. Also measuring my arm everyday to check for swelling and such.
I got bad sleep, which is typical, especially for the first night. With the IV being finicky during antibiotics and people coming in and out, I didn’t get much sleep. The anxiety didn’t help much either.
Today was my first full day here and I already want to leave. My depression is just being fueled, the stress of school adds to my anxiety. Just everything is… ugh I don’t know.
Anyway that’s all for now,